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Parents Raise Money for Down Syndrome
By: Greg Stanmar
Source: The Pantagraph Bloomington, IL
10/23/2005
STREATOR - When Drake was born with Down syndrome, his parents
naturally became concerned about the medical complications and
expense involved.
Now E.J. and Candace Flanigan give thanks each day that fate has
given them such a loveable 5-year-old.
To allow other people to learn to love Down syndrome children as
much as they do, and to raise money for support programs, the
Jaycees are hosting Buddy Walk today in Streator.
The walk kicks off at 1 p.m., rain or shine. T-shirts will be
handed out for pledges of $50 or more, and refreshments will be
served after the walk. Registration begins at noon at the Lions
shelter at the park's south end.
More information is available by calling the Flanigans at (815)
672-8309.
Bloomington's Buddy Walk was two weeks ago.
Last year, 80 people in Streator raised $6,000 in a mile walk
through City Park and into the downtown area. About 70 percent of
the money is kept for local programs, with the rest going to the
National Down Syndrome Society.
"We try to keep the length down so the children can accompany
us," said Candace Flanigan. "It's the community exposure that's as
important as the money."
Down syndrome is caused by a glitch in a newborn's genetics.
About one in 500 births result in the extra chromosome, the cause of
which is unknown.
By law, Down syndrome students must be mainstreamed into the
general student population as much as possible, but a gentle
prodding of school officials is often needed "no matter what school
district you live in," Flanigan said.
It doesn't help to live in Illinois where state funding for
inclusion "is dead last," she added.
Prodding by a group is more effective than by an individual and
for that reason the Livingston County Down's Syndrome Society has
set mainstreaming as a priority, along with peer support and
physical therapy, said Flanigan.
That organization has identified 20 local families with Down's
Syndrome children, most from LaSalle County.
Drake and his father were at a Streator City Council meeting last
week to drum up support for the walk, now in its third year.
Though the organization carries the Livingston County name, it is
open to all area families with an interest in Down's Syndrome. There
is no equivalent organization in LaSalle County.
It doesn't take much exposure, "even for the cold hearted, for
some of these misconceptions to fade away," said E.J. Flanigan.
(C) 2005 The Pantagraph Bloomington, IL. via ProQuest Information and Learning Company; All Rights Reserved
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